Hi everyone, Hope you are all well. Today (Saturday 29th of February 2020) is Rare Disease Awareness Day. To help raise some more...

Hi everyone, Hope your all well On Saturday 1st of June I attended ‘The Ends Festival’ which was a local festival and there was loads of...

Hi everyone, Hope your all well So today after many years of research the SMA community hit a huge milestone. In December 2016, Spinraza...

Hello everyone, Hope you are all well. On Saturday 30th of March 2019 I attended the Crystal Palace vs Huddersfield match. If...

Hello everyone, Hope your all went. On Friday 22nd of March I attended my first England international football match at Wembley, it was...

Hello everyone, Hope your all well! If you didn't know already I'm a Crystal Palace fan, i attend most home games and on Saturday 24th of...

Hi Everyone A few days ago i went to hospital for the night for my 6 monthy Sleep Study, I am going to be writing about what a Sleep...